News & Stories

Tom and Niece

July Volunteer of the Month: Tom Scamuffa

June 30, 2023 Comments Off on July Volunteer of the Month: Tom Scamuffa

Tom Scamuffa’s drive to end ALS started when his wife Linda was diagnosed with ALS in 2006. Linda was aware of the disease from losing her father to it in…

Nancy Sylvester

Answering Your ALS Questions with Jayne Etskovitz, MSW, LSW

June 28, 2023 Comments Off on Answering Your ALS Questions with Jayne Etskovitz, MSW, LSW

Each month, a member of the Chapter’s experienced care team answers three questions about ALS and their role in supporting ALS families. How do you work directly with our patients…

JSUMC

JSUMC’s ALS Center First in NJ to Provide New ALS Treatment

June 15, 2023 Comments Off on JSUMC’s ALS Center First in NJ to Provide New ALS Treatment

Jersey Shore University Medical Center’s ALS Center is the First in New Jersey to Provide the First Treatment to Target a Genetic Cause of the Disease• The center is one…

Larissa and her dad

Answering Your ALS Questions with Larissa Gibbons

June 1, 2023 Comments Off on Answering Your ALS Questions with Larissa Gibbons

Each month, a member of the Chapter’s experienced care team answers three questions about ALS and their role in supporting ALS families.     How did your personal connection to…

Laura Kennedy

June Volunteer of the Month: Laura Kennedy

June 1, 2023 Comments Off on June Volunteer of the Month: Laura Kennedy

Some people volunteer for the ALS cause because they want to give back after receiving care. Some volunteer because they have witnessed the great need for increased research. The Chapter’s…