News & Stories
Exactly 3 years ago I heard 3 letters that forever altered the trajectory of my life: ALS. It was something I studied in medical school, but I never imagined it…
Robin Steiner’s mother loved the beach. The warm sand, cool water, and sun along the horizon soothed her and made her feel at peace with the world. In the years…
Thank you to Rita Snyder for sharing her personal story to inspire others impacted by ALS. If you’d like to share your story, please email Tony@alsmidatlantic.org. I was diagnosed with…
This video is made possible through the talents of Philly Philms. Since 2012, ALS United Mid-Atlantic has partnered with Philly Philms to bring the stories of ALS families to life…
In a monumental move, the Centers for Medicare and Medicaid Services (CMS) has unveiled a final rule that marks a decisive stance against hindering essential medical care through the misuse…
Our mission at ALS United Mid-Atlantic includes uniting and empowering the ALS community through a collaborative approach to fostering bold research initiatives. Every aspect of our work is dedicated to…
January 11, 2024 Hackensack Meridian Neuroscience Institute at Jersey Shore University Medical Center’s ALS Center is the first ALS care provider in the United States to offer patients a new…
The National Institute of Neurological Disorders and Stroke (NINDS), seeks to include people with lived experience of neurological disorders in the planning, execution, and communication of research. People with lived…
Please read and share this information about an upcoming ALS/FTD conference from Penn Medicine. The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial…