News & Stories

June 2024 Volunteers of the Month: Marc and Lori Schefsky

May 31, 2024 Comments Off on June 2024 Volunteers of the Month: Marc and Lori Schefsky

Volunteering restored Marc Schefsky’s faith in humanity. In late 2021, Marc Schefsky began to feel a twitch in his left elbow and weakness in his legs. After a career as…

Welcome to the Board: Robert Doren

May 30, 2024 Comments Off on Welcome to the Board: Robert Doren

ALS United Mid-Atlantic is thrilled to welcome Robert Doren as the newest member of its Board of Directors. Robert brings personal and professional experience to the ALS United Mid-Atlantic mission…

A Message for ALS Awareness Month

May 22, 2024 Comments Off on A Message for ALS Awareness Month

A Message from the Executive Director Dear Friend, As ALS Awareness Month concludes, I want to share this personal note with you about the mission of ALS United Mid-Atlantic and…

ALS United Celebrates New FAA Rules to Make Travel More Accessible

May 17, 2024 Comments Off on ALS United Celebrates New FAA Rules to Make Travel More Accessible

ALS United thanks Congress for passing the bipartisan Federal Aviation Administration reauthorization bill, which includes important provisions to improve accessibility in air travel. These changes come after years of work…

Roots Radio Podcast

May 15, 2024 Comments Off on Roots Radio Podcast

ALS United Mid-Atlantic Social Worker Jessie Meier hosts the Roots Radio Podcast with Lenny Rafalko, who is living with ALS. Each podcast episode features a guest who shares their perspectives…

2024 National Advocacy Event – Participate Virtually

May 13, 2024 Comments Off on 2024 National Advocacy Event – Participate Virtually

You are invited to join ALS United Mid-Atlantic for I AM ALS’s inaugural Community Summit and third annual DC ALS Awareness Event. While in-person attendance options are now fully booked,…