News & Stories
Advocating for Accessibility
ALS families frequently face challenges when visiting offices like the Pennsylvania State Capitol in Harrisburg, PA. Parking is inconvenient, elevators are too small for wheelchairs, hallways are narrow, and caregivers…
September 2024 Volunteer of the Month: John Gauger
John Gauger isn’t seeking praise or awards. He just wants to do good and to make a difference, especially when it comes to ending ALS. When John was named as…
Flickering Souls: Illuminating ALS
Art is the gateway to the soul. Eric Brunner is an accomplished artist who was inspired by his personal journey living with ALS to create a project called “Flickering Souls”…
ALS United Mid-Atlantic Announces Support for Major ALS TDI Initiative
This summer, the ALS United Mid-Atlantic research committee chose ALS TDI as one of the recipients of a grant to expand on promising ALS studies. This grant will benefit the…
ALS United Mid-Atlantic Applauds Program to Provide AI Voice Technology
ALS United Mid-Atlantic is excited to share news from ElevenLabs’ Impact Program to provide AI Voice Technology to people living with ALS. Voice preservation helps a person with ALS to…
Update on Proposed Changes in Medicare Part D
Congress passed the Inflation Reduction Act in August of 2022. This legislation impacted many government programs, including Medicare, with new rules designed to expand benefits and lower drug costs. The…
ALS United Mid-Atlantic Applauds Introduction of Healthy Brains Act
ALS United Mid-Atlantic applauds the introduction of the Healthy Brains Act. The bipartisan Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY…
Apple Vision Pro Shows Promise for ALS
ABC News recently aired a story about how the new Apple Vision Pro can benefit people with ALS and other neurological diseases. Mark, a person with ALS from Pennsylvania, became…
August 2024 Newsletter
ALS Ice Bucket Challenge Turns 10 Years Old This Summer marks 10 years since the original ALS Ice Bucket Challenge, which raised millions of dollars for ALS research and care,…
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