Become an Advocate

As an advocate, you can help change the laws and policies that affect thousands of persons with ALS and their families.

What is Advocacy and why is it important?

Advocate: noun
a person who publicly supports or recommends a particular cause or policy.

Our advocates are leaders in advocating for policies that would improve the lives of those living with ALS, their families and caregivers. Through years of testifying to elected leaders, our advocates have led to increased federal funding for ALS research, passage of the Medicare waiver for ALS patients, the presumptive disability ruling from the Social Security Administration, and funding in Pennsylvania, New Jersey, and Delaware.

How You Can Help

Our advocates are passionate about encouraging government officials at all levels — state, local, and federal — to improve awareness and resources for people affected by ALS.

Advocates affect real change in the way that our government responds to the needs of the ALS community.

Sharing your connection to ALS in person, over the phone, in an email or even a letter can help educate and mobilize our elected officials to take action! Our ALS Advocates help change the laws and policies that affect all people with ALS and their families every single year.

Choose the "Public Policy" interest using the email sign-up below to stay informed.

Mary Gay Scanlon

Fund Quality ALS Care at the State Level

ALS United Mid-Atlantic advocates for full funding of ALS care services at the national and state level. Through the power of personal advocacy, the ALS community has achieved significant funding for ALS care in Pennsylvania, New Jersey, and Delaware, which totaled over $2.5 million from these state budgets in FY 22-23. Our goal is to sustain and grow this funding and search for more ways to benefit the ALS cause at the state level.