Podcasts & Videos
ALS United Mid‑Atlantic offers a rich collection of multimedia resources designed to inform, inspire, and empower the ALS community. Through engaging podcast episodes and curated video content, we share expert insights, lived experiences, and practical guidance on topics that matter most to people living with ALS, their families, caregivers, and advocates. Our podcast series, GOALS: An ALS United Podcast, features conversations with medical professionals, researchers, advocates, and individuals affected by ALS. Episodes explore a wide range of subjects, from advances in care and emerging research to caregiving strategies, advocacy efforts, and community support, providing an accessible platform for education and connection.
In addition to podcasts, our video resources bring important information to life through interviews, event highlights, and educational segments that deepen understanding of ALS and the issues facing the community. Whether you’re looking for guidance on navigating the ALS journey, learning about the latest developments in treatment and technology, or hearing personal stories of resilience and advocacy, this page is a central hub for audiovisual content that supports learning and engagement. These media offerings reflect ALS United Mid‑Atlantic’s commitment to comprehensive advocacy and community outreach, helping to raise awareness, spread knowledge, and amplify the voices of those impacted by ALS.
ALS United Mid-Atlantic board member Crystal Goodwyn joins the GOALS Podcast to discuss her personal connection to ALS.
ALS United Mid-Atlantic nurse Gail Houseman, RN, MSN-APRN, discusses the valuable Visiting Volunteer program.
Sarah Brendle joins the ALS United Mid-Atlantic GOALS Podcast to discuss her life with ALS as a mother and an advocate.
Tim Abeska, Cristy Hardin, and Deb Winters discuss the Tim Lowery Series and building community for those living with ALS.
Alisa Brownlee discusses accessibility, home modifications, and the personal connection between those living with ALS and care staff.
Melissa Coll and Anne Cooney discuss their work assisting ALS patients and families, advocating for the ALS cause, and more.
Carol Hamilton discusses the ALS research efforts from The ALS Therapy Development Institute (ALS TDI).
Dana Little discusses her experience as a caregiver for her husband during his battle with ALS and more.
Diane Reibel, PhD, discusses her work on ALS and Mindfulness including the science behind mindfulness and reducing stress.
Josh Hunter, who has a form of ALS called Juvenile ALS, discusses mental health, caregiving, and more.
Janie Dalrymple discusses making a decision on mechanical ventilation, cost considerations, and long-term planning.
Maureen Reid, RN, BSN, shares her personal ALS connection, discusses the role of nursing in ALS care, and more.
Daniela Zarnescu, PhD, discusses advances in ALS research
Laura Ness with Hearts for Home Care discusses advocating for home care access, home care benefits, and more.
Paul Melmeyer from MDA discusses collaborating on ALS Advocacy, recent advocacy successes, and more.
James Grogan, MD, and Andrew Geronimo, PhD, of @PennStateHealth discuss advances in Brain Computer Interface and more.
Sheri Strahl, MPH, MBA, and David Buseck share their experience and insight into ALS research through their work at ALS Network.
Doug Yocum discusses living with ALS, home care, expanded access for clinical trials, support for ACT for ALS, and more.
Jayne Etskovitz discusses her work supporting ALS patients and caregivers, including the benefits of resource groups.
Pennsylvania State Representative Kyle Mullins discusses his personal ALS connection, his advocacy efforts, and more.
Michelle Narin with Placing Stones discusses a special offer to preserve the legacies of loved ones, including those with ALS.
Raziel Green, who is living with ALS due to the SOD1 mutation, talks about her diagnosis, her clinical trial, and more.
Lauren Holder of Help 4 HD discusses living with Huntington's Disease and how we should partner for our shared goals.
Emma Allen and Myah Stone discuss the ALL ALS Consortium and the benefits of ALS research and observational studies.
Ashley Lee discusses advances in advocacy and research and the connection between ALS and military veterans.
Chris Albright discusses the ALS United Walk program and upcoming ALS United Walk events.
Jessie Meier discusses her role as a social worker, her connection with ALS patients and families, and more.
Michele Yelland talks about what inspired her to write her book, her travels with ALS, and what gives her hope.
Director of Development Donna Cleary talks about her work at ALS United Mid-Atlantic, how to leave a lasting legacy, and more.
Vincent Cella, a 22-year retired Gulf War veteran, shares his story to bring more attention to the issue of veterans and ALS.
Annette Miller, RN, discusses how her role as a nurse has evolved, how she guides people through the challenges of ALS, and more.
Gary Goldstein shares his wife Paula's battle with ALS, successes through advocacy, his Named Fund for Paula, and more.
Stephanie Dobak, MS, RD, LDN, CNSC, discusses nutrition and diet for people with ALS and their caregivers.
Mary Grams discusses her family's ALS story, progress in ALS care, the extensive research programs in North Carolina, and more.
Chloe LaBella and Arianna Jarosinski discuss Augmentative and Alternative Communication for people with ALS.
Courtney Fitch explains the role of a Genetic Counselor, how she works with the clinic team, and more.
Jamie Pace from AMRAMP discusses our ramping program and how it benefits people with ALS.
Dr. Irene Rombel discusses how AI can be a tool to advance research into diseases like ALS.
Bill O'Sullivan discusses his family's history with ALS, his family's proud history of military service, and more.
Jamie Pace talks about the process of installing a stair glide and how it can be used to improve access in the home.
Charles Poeppelman discusses how Synchron is developing Brain Computer Interface technology for people with ALS.
Gale Ferranto discusses her mother's battle with ALS and her support for ALS care and research.
Amanda Cuth discusses the challenges and strategies related to speech therapy for individuals with ALS and more.
Tim and Jeff talk about their family's history with ALS, their love of baseball, the support from the Philadelphia Phillies, and more.
Dr. Mark VandeBraak talks about the various forms of grief, expressing compassion and empathy, and more.
Zachary Simmons, MD and Kathleen Twomey, MD discuss their new innovations around respiratory care and ALS.
Daniel Kelly discusses the important topic of Swallowing and ALS to address concerns, safety, and best practices.
Regina Shuster discusses her family's history with ALS and her work at events such as the ALS United Walk.