May is ALS Awareness Month, and you can make a difference.
Throughout the month, we’ll highlight important facts about ALS, recent scientific breakthroughs, and key public policy initiatives. We’ll also shine a light on the invaluable care service programs provided by ALS United Mid-Atlantic and the meaningful impact they have on patients and families across our region.
Each year, ALS United Mid-Atlantic serves more than 1,200 people living with ALS throughout Pennsylvania, New Jersey, and Delaware. Your stories inspire and drive our work every single day, and we’re honored to share them throughout ALS Awareness Month.
Your commitment to raising awareness and support is essential. Together, we provide help and hope to the ALS community. Thank you for being a vital part of this mission, let’s unite to end ALS.
Ways that YOU can help during ALS Awareness Month!
Register for an ALS United Walk
The ALS United Walk is a powerful opportunity to come together, show support, and make a real difference. Participation helps raise critical funds for research and care programs while strengthening our community.
Please consider registering for an event near you!
- Saturday, June 6, in Hershey, PA
- Saturday, September 12, in Wilmington, DE
- Saturday, September 19, in Ocean City, NJ
- Saturday, September 26, in Lehigh Valley, PA
- November 2026 in Philadelphia, PA
Register as a Charity Runner for Philadelphia Marathon Weekend
ALS United Mid-Atlantic is proud to announce we are an official charity partner for the 2026 Philadelphia Marathon Weekend!
Marathon Weekend in Philadelphia has been a weekend filled with determination, celebration, and emotion since it first began as a small, local event in 1994. Since then, it has grown to what it is today – one of the top 10 marathons in the United States. November 20th – 22nd, 2026 join over 35,000 runners as they take to the historic streets of Philadelphia.
To register for the 8k, half marathon, or full marathon email ALS United Mid-Atlantic’s Engagement Coordinator, Chris Albright, at CAlbright@alsmidatlantic.org.
Participate in ALS Advocacy
Sharing your personal connection to ALS, whether in person, by phone, email, or letter, helps educate and motivate elected officials to take action.
ALS Advocates play a critical role in shaping laws and policies that impact individuals and families affected by ALS. Legislators need to hear directly from you about the importance of funding research, expanding care, and improving quality of life.
To get involved, contact Tony Heyl at Tony@alsmidatlantic.org.
Get Active on Social Media
Raising awareness can be as simple as engaging online:
- Subscribe to ALS United Mid-Atlantic on YouTube and engage with videos
- Follow and interact on Facebook, LinkedIn, and Instagram
- Listen to and share the ALS United Mid-Atlantic Podcast (Spotify, Apple, YouTube)
- Share your personal ALS story and tag @alsmidatlantic to inspire others
Wear ALS United Mid-Atlantic Gear
Show your support by wearing ALS United Mid-Atlantic t-shirts, hats, or bracelets throughout the month.
Whether you’re at the grocery store or out in your community, your gear can spark meaningful conversations and inspire others to get involved. Share your photos and videos on social media, tag @alsmidatlantic, and tell your story to amplify the message.
Volunteer with ALS United Mid-Atlantic
ALS United Mid-Atlantic’s events are only possible because of the passion and dedication of our wonderful volunteers. There are many ways ALS United Walk volunteers can help both on Walk Day and leading up to the Walk. From phone calls or assisting with mailings to event-day tasks like registration or set-up, there is something for everyone!
To learn more about our volunteer programs, email Chris Albright at CAlbright@alsmidatlantic.org.
Together, we can advance ALS care, research, and advocacy. Increased awareness leads to stronger support, better funding, and greater access to essential services.
ALS Awareness Month is your opportunity to make an impact, right here in Pennsylvania, New Jersey, and Delaware.