News & Stories

New Jersey Legislature Passes Key ALS Legislation

January 26, 2026 Comments Off on New Jersey Legislature Passes Key ALS Legislation

In a big win for the ALS community, New Jersey has passed and signed into law legislation that will strengthen how amyotrophic lateral sclerosis (ALS) and related motor neuron diseases…

New Jersey Legislature Advances Key ALS Legislation

December 23, 2025 Comments Off on New Jersey Legislature Advances Key ALS Legislation

On Thursday, December 18th, the New Jersey State Senate advanced legislation to make ALS a reportable disease. The bill was championed by Senators Gopal and Singleton and passed unanimously with…

Huge News for ALS in Pennsylvania

November 24, 2025 Comments Off on Huge News for ALS in Pennsylvania

We have big news! After months of negotiations, the Pennsylvania state budget has been passed and signed into law by Governor Josh Shapiro. The 2025-26 budget continues funding for ALS…

In-Home Caregiver Assessment Resources & Education (CARE) Act of 2025

November 24, 2025 Comments Off on In-Home Caregiver Assessment Resources & Education (CARE) Act of 2025

ALS United Mid-Atlantic joins coalition of New Jersey advocacy groups to proudly endorse Senator Cory Booker’s In-Home Caregiver Assessment Resources & Education (CARE) Act of 2025. Every day, families across…

United for ALS Advocacy in New Jersey

August 26, 2025 Comments Off on United for ALS Advocacy in New Jersey

ALS Advocates demonstrated their power in New Jersey in 2025 by securing $325,000 in the state budget for ALS care programs. State funding for ALS care was eliminated in the…