Thank You for Giving to the ALS Cause for Giving Tuesday
Thank you to everyone who donated to the mission of ALS United Mid-Atlantic for Giving Tuesday. On this global day of giving, you made ALS care, advocacy, and research a priority.
In 2024, your donations allowed ALS United Mid-Atlantic to expand and grow care programs, invest in groundbreaking ALS research projects, and empower ALS patients and families through advocacy. The year is not over yet, and you still have time to make your tax-deductible gift before the end of December.
2024 Annual Celebration Honors
the Philadelphia Phillies
The Philadelphia Phillies have led the effort to Strike Out ALS since 1984.
Thank you to everyone who joined the 2024 Annual Celebration to recognize the Philadelphia Phillies for leading the fight to Strike Out ALS. Since 1984, the Phillies have raised over $23 million for the ALS cause, ensuring that ALS patients can receive the care they need and enabling researchers to work towards new treatments and eventually a cure for this disease.
The 2024 Annual Celebration included a presentation from Asplundh, a tribute to caregiving, a visit from the Phillie Phanatic, the Flame of Hope Awards, and remarks from Mandy Bell and Sarah Langs.
The Today Show Highlights Flickering Souls ALS Art Project
Eric Brunner, creator of Flickering Souls, was a guest at the 2024 Annual Celebration.
Over the past year, Eric Brunner has used his artistic talents to bring attention to the realities of ALS. Eric is an artist and father from Philadelphia who is living with ALS. He saw art as a way to empower those affected by ALS to show the faces of those who have been impacted by the disease.
The Today Show brought national attention to Eric’s project over the Thanksgiving holiday. Now all of America can see what Eric’s work means to so many people.
ALS United Walk
Thank You for Supporting the ALS United Walk
ALS United Mid-Atlantic thanks everyone who participated in a 2024 ALS United Walk. The annual Walk season was capped off with an amazing day at Citizens Bank Park in Philadelphia. Now it is time to carry that energy and enthusiasm into 2025 to continue raising money and awareness for ALS care, advocacy, and research.
Uncovering the Genetics of Familial FTD/ALS
The Penn FTD Center will be hosting its fifth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Tuesday, February 25, 2025, from 3:00PM-6:00PM EST.
This event will recognize and address topics for people living with or at risk for a familial and/or genetic form of FTD/ALS. You will have the chance to hear from genetic counselors, neurologists, and social workers on the genetics of FTD and ALS—and have the chance to ask your questions in real-time.
Please stay tuned for the registration link, meeting agenda and additional details. In the meantime, please reach out to us at PennFTDC@pennmedicine.upenn.edu with any questions.
Help END ALS with Your IRA Rollover
Make your year-end gift now to fight ALS through your IRA. An IRA Charitable Rollover Gift satisfies your RMD but is not considered reportable income, which saves you taxes. You must be age 70-1/2 or older to qualify. For more information, contact Donna Cleary at 215-664-4133 or donna@alsmidatlantic.org.
Knock Out ALS
Official Celebrity Boxing/XRUMBLE is proud to partner with ALS United Mid-Atlantic in an effort to “Knockout” ALS, Saturday, December 14, 2024 at 7:30PM, Harrah’s Casino Philadelphia, in Chester, PA. Four Championship Fights and 8 total bouts in all. Live music performances throughout the evening and an after-party immediately following the event. A generous portion of ticket proceeds purchased will be directly donated to the ALS cause. Tickets are available at www.xrumble.com, please use Code: ALS.
Caregiver Spotlight
Lisa Rosica cares for her husband Bryan, who is living with ALS.
ALS United Mid-Atlantic Recognizes National Family Caregivers Month
November is National Family Caregivers Month. ALS United Mid-Atlantic recognizes, values, and supports caregivers every month of the year through education, home care, and caregiver retreats. Last month, ALS United Mid-Atlantic joined ALS organizations from around the country with the Cures Collective in #CallingAllCaregivers, with stories from people like Lisa Rosica, who provides loving support for her husband Bryan.
ALS United Mid-Atlantic celebrated caregivers through special Caregivers Days in November. Thank you to all who participated!
Team Troy made memories at the Hershey ALS United Walk.
December 2024 Volunteers of the Month:
Marie Sanders and Team Troy
Troy Sanders’ battle with ALS came to an end on December 4, 2017, when he passed away at his home with his loving family by his side. He met each day of the disease with the determination and joy that made his wife Marie love him for so many years, and he passed on those attributes to his sons Jaden and Cameron.
Following Troy’s passing, Marie Sanders and Team Troy kept Troy in their hearts through events like the ALS United Walk and their annual golf outing. Marie is an ALS warrior, and she credits her team of family and friends with making their successes possible.