Information for Newly Diagnosed Patients
Being newly diagnosed with ALS can be overwhelming, but ALS United Mid-Atlantic is here to guide you every step of the way. We provide trusted resources, expert guidance, and compassionate support for patients, families, and caregivers across Pennsylvania, New Jersey, and Delaware.
ALS Clinic Information & Contacts
Connect with ALS specialists and clinics in your region. Our resources provide clinic locations, contact information, and guidance on scheduling appointments, accessing care teams, and coordinating medical support.
Health, Nutrition, and Supplements
Learn about ALS vitamin supplements, nutrition plans, and dietary strategies that can help maintain strength, energy, and quality of life. We also provide guidance on affordable medications through programs like Good Rx.
- ALS Vitamin Supplements: Information on vitamins and nutritional support that may benefit ALS patients.
- Nutrition and ALS: Tips on maintaining optimal nutrition to support strength, energy, and quality of life.
- Good Rx: Resources for affordable medication options.
Forms, Medical Records, and Applications
Easily access important documents including consent and release forms, record change forms, and medical records guidance. We also provide step-by-step support for Social Security disability applications, ensuring you can navigate the process confidently.
- Consent & Release Form: For sharing medical information with your care team.
- Record Change Form & Medical Records: Guidance on accessing and updating medical records.
- SS Disability Application: Step-by-step support for applying for Social Security disability benefits.
Support, Research, and Education
Discover ALS research opportunities at Penn State Hershey, learn from ALSUntangled educational resources, and join resource groups for patients, families, and caregivers. Our “Next Steps After Diagnosis” resources provide practical guidance for planning care, managing symptoms, and accessing critical services.
- ALS Research at Penn State Hershey: Learn about ongoing studies, clinical trials, and ways to participate.
- ALSUntangled Info: Trusted information about ALS treatments and clinical guidance.
- Resource Groups: Access local and virtual support groups for patients, families, and caregivers.
- Next Steps After Diagnosis: Practical guidance on planning care, accessing resources, and coordinating medical support.
Additional Resources for Patients and Families
Register with the National ALS Registry, connect with ALS resource groups, and access caregiver and youth resources. We also offer assistance programs specifically for newly diagnosed patients, helping with financial, emotional, and practical support.
- ALS Registry: Register to support research and access clinical studies.
- Information for Caregivers & Children: Resources to help family members navigate ALS care.
- Assistance for Newly Diagnosed Patients: Financial, emotional, and medical support resources for newly diagnosed individuals.