News & Updates
Dear Friends,
Today and always, ALS United Mid-Atlantic is here to fight for people with ALS and their families. In the face of daily uncertainty in the news, our team is ready to help in ways such as navigating complicated insurance issues to standing up for continued ALS research funding from the NIH. Thanks for being part of our community.
Jeffrey W. Cline
Executive Director
ALS United Mid-Atlantic
Advocacy Alert: Preserve Funding for Essential Research
ALS United Mid-Atlantic joins the ALS community from across the United States to oppose cuts to research grants at the National Institutes of Health (NIH). We strongly encourage Senators and Representatives to call for a reversal of the “Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates.” This policy would cap the coverage of indirect costs to 15% of the grant, which would drastically harm ongoing research studies and stall progress toward new treatments for ALS.
The NIH is the number-one global leader in basic scientific research. In 2023, research institutions in our region received over $2 billion from NIH, which ensured sustained research programs, good jobs, and investments that lead to new therapies for ALS and other devastating illnesses.
ALS United Mid-Atlantic encourages you, the ALS community, to share your stories and push back on these cuts.
Our ALS Stories
Please send recommendations to Gail Houseman: Gail@alsmidatlantic.org
Upcoming Events
Help & Hope Symposium
Thursday, April 10, 2025 | 9:00 AM
ALS United Mid-Atlantic is proud to present the 2025 Help & Hope Symposium on Thursday, April 10, from 9:00 AM – 3:30 PM, at the Valley Forge Casino & Resort, Stardust Hotel in King of Prussia, PA.
The Help & Hope Symposium features exciting presentations from esteemed ALS clinicians and researchers. The event shares critical information from experts to help those living with ALS and their caregivers. Attendees will also have the opportunity to visit with local vendors to discuss technology and tools for people with ALS.
Tickets are free for people with ALS and one accompanying caregiver. General Admission tickets are $70 each.
7th Annual Dan Diaz Biotech Breakfast Club ALS Fundraiser
Thursday, March 27, 2025 | 5:30 PM
On Thursday, March 27, the 7th Annual Dan Diaz Biotech Breakfast Club ALS Fundraiser returns to The Bucks Club in Jamison, PA. This fiesta-themed evening is a great networking event where guests can enjoy dinner, participate in exciting silent and live auctions, and learn about cutting-edge research. Tickets are available for $75.
The Dan Diaz Biotech Breakfast Club and ALS United Mid-Atlantic will co-host this event.
ALS United Walk
Saturday, May 3, and Saturday, June 7, 2025
Join us this spring as we celebrate ALS United Walks in Seaside (May 3), Scranton (May 3), and Hershey (June 7). The ALS United Walk is a time for our community to come together to show that no one faces ALS alone. There is no registration fee, but participants are encouraged to fundraise throughout the year.
For questions about the ALS United Walk, please reach out to our Engagement Team at events@alsmidatlantic.org.