News & Updates
Keynote Presentation Announced for the 2026 Help & Hope Symposium
The Help & Hope Symposium will feature a keynote presentation, Strength Through Collaboration, highlighting the power of collective expertise among leaders in neurological research and care.
Shana Dodge, PhD, and Esther Kane, MSN, RN-CDP, of the Association for Frontotemporal Degeneration; Zach Hardy of The Michael J. Fox Foundation for Parkinson’s Research; Dr. Kyra O’Brien in collaboration with the Alzheimer’s Association; and Steve Spaulding, MA, of ALS United Mid-Atlantic will share insights on how cross-organizational partnerships are accelerating research.
Providing Care Where It Matters Most: At Home
Our Howard I. Abrams In-Home Care Program helps people living with ALS remain safe, comfortable, and supported in the place that matters most — home. By providing financial assistance for in-home caregiving and respite services, the program eases the physical, emotional, and financial strain ALS places on families. In-home care preserves dignity, promotes independence, and strengthens the entire family unit. Because when families facing ALS receive the right support at home, they gain more than practical care. They gain stability, relief, and peace of mind.
Our ALS Stories
Upcoming Events
Navigating ALS with Purpose and Positivity
Thursday, March 5 | 4 PM
Join Dr. Chelsea Shugars, a board-certified, fellowship-trained neurologist, and John H., a veteran living with limb-onset amyotrophic lateral sclerosis (ALS), as they share their unique perspectives on ALS care and treatment. Dr. Shugars will discuss how she supports people with ALS and why she prescribes RADICAVA ORS® as part of her approach. John will share the powerful ways he has found light, hope, and inner strength following his ALS diagnosis, highlighting the importance of maintaining personal interests and purpose. He will also talk about his own experience with RADICAVA ORS and how it fits into his active, travel-filled life.
Help & Hope Symposium
Thursday, April 9 | 9 AM
Tickets are on sale now for the annual Help & Hope Symposium, where top ALS clinicians and researchers deliver powerful, inspiring presentations you won’t want to miss. Discover essential information to support people living with ALS, explore innovative technologies from local vendors, and experience the optimism fueled by breakthrough insights from leading ALS researchers.
People with ALS and one caregiver can attend for free, but must register online. General admission tickets are available for $70. For questions about the Help & Hope Symposium, please reach out to our Engagement Team at events@alsmidatlantic.org.
ALS United Walk
Saturday, April 18, May 2, and June 6
Join us this spring as we celebrate ALS United Walks in Scranton (April 18), Seaside (May 2), and Hershey (June 6). The ALS United Walk is a time for our community to come together to show that no one faces ALS alone. There is no registration fee, but participants are encouraged to fundraise throughout the year.
For questions about the ALS United Walk, please reach out to our Engagement Team at events@alsmidatlantic.org.
8th Annual Dan Diaz Biotech Breakfast Club ALS Fundraiser
Thursday, May 7 | 5:30 PM
This fiesta-themed evening is a great networking event where guests can enjoy dinner, participate in exciting silent and live auctions, and learn about cutting-edge research. Early-bird tickets are available for $75 until March 13.
The Dan Diaz Biotech Breakfast Club and ALS United Mid-Atlantic will co-host this event. For questions, please reach out to our Engagement Team at events@alsmidatlantic.org.
ALS Awareness Night presented by Asplundh
Tuesday, June 2, 2026 | 6:40 PM
In honor of Lou Gehrig Day, join the Philadelphia Phillies to celebrate ALS Awareness Night presented by Asplundh at Citizens Bank Park when the Phillies host the San Diego Padres. Purchase your ticket using the link below and a $6 per ticket Group Fundraiser Rebate fee will be applied to your order. Proceeds from the rebate will benefit ALS United Mid-Atlantic.
For questions about ALS Awareness Night presented by Asplundh, please reach out to our Engagement Team at events@alsmidatlantic.org.
Jersey Shore ALS United Ride
Saturday, June 13 | 7 AM
ALS United Mid-Atlantic is returning to Morey’s Piers in Wildwood, NJ! Riders can choose 25 KM, 50 KM, or 100 KM routes with a $75 registration fee and a $250 fundraising commitment, or enjoy the family-friendly 6-mile ride with no fundraising required. Early-bird registration is just $50 for a limited time, so sign up early and save! Riders with ALS and virtual participants can register for free.
For questions, please reach out to our Ride Coordinators, Taylor Montgomery and Chris Albright, at ride@alsmidatlantic.org.