News & Updates
ALS Awareness Month
May is ALS Awareness Month and you can make a difference. This month, we will highlight facts about ALS, recent scientific breakthroughs, and vital public policy initiatives. We will shine a light on the invaluable care service programs provided by ALS United Mid-Atlantic and the impact they have on patients and families.
Read the article linked below to learn how you can get involved during ALS Awareness Month.
Walk United to End ALS
The ALS United Walk brings incredible energy and an outpouring of support for those affected by ALS. For over 20 years, our community has gathered throughout Delaware, New Jersey, and Pennsylvania to walk in honor of loved ones with ALS, remember those we have lost, and walk toward a future without ALS.
Lehigh Valley ALS Patients, Advocates Fear What Federal Cuts for Medical Research Mean for Them
Sarah Brendle loved playing tennis when she was younger. She’d love to play now with one of her children who picked up the hobby, but she can’t hold a racket for more than a few minutes. ALS robbed the 52-year-old of that ability. It also prevents the Pennsburg resident from working, or even leaving home often.
Now she fears federal funding cuts will cost her a potential new treatment that could prolong her or another ALS sufferer’s life.
Our ALS Stories
Upcoming Events
ALS United Walk
Saturday, May 3, and Saturday, June 7, 2025
Join us this spring as we celebrate ALS United Walks in Seaside (May 3), Scranton (May 3), and Hershey (June 7). The ALS United Walk is a time for our community to come together to show that no one faces ALS alone. There is no registration fee, but participants are encouraged to fundraise throughout the year.
For questions about the ALS United Walk, please reach out to our Engagement Team at events@alsmidatlantic.org.
ALS Advocacy for All: Understanding ALS Policy & Taking Action
Friday, May 16, 2025 | 9:30 AM – 10:15 AM
The landscape of ALS policy and funding is evolving, with new legislation, research investments, and regulatory changes shaping the future of care and treatment. ALS United Greater New York is hosting its Education and Resource Summit, including a special session focusing on advocacy, entitled ALS Advocacy for All. This workshop will break down the latest updates in ALS-related policies, including wins and ongoing challenges. Participants will gain a clear understanding of how these changes impact the ALS community and, most importantly, learn simple yet powerful advocacy steps they can take, whether contacting legislators, engaging in grassroots efforts, or amplifying their voices for change. No matter your experience level, you’ll leave empowered to make a difference in the fight against ALS.
For questions, please reach out to Tony Heyl at Tony@alsmidatlantic.org.
ALS Awareness Night presented by Asplundh
Monday, June 9, 2025 | 6:45 PM
In honor of Lou Gehrig Day, join the Philadelphia Phillies to celebrate ALS Awareness Night presented by Asplundh at Citizens Bank Park when the Phillies host the Chicago Cubs. Purchase your ticket using the link below and a $5 per ticket Group Fundraiser Rebate fee will be applied to your order. Proceeds from the rebate will benefit ALS United Mid-Atlantic.
For questions about ALS Awareness Night presented by Asplundh, please reach out to our Engagement Team at events@alsmidatlantic.org.
Jersey Shore ALS United Ride
Saturday, June 14, 2025 | 7:30 AM
ALS United Mid-Atlantic is returning to Morey’s Piers in Wildwood, NJ! Our annual Jersey Shore ALS United Ride is a one-day cycling event for people of all ages and riding abilities. Cyclists will travel scenic country roads, the Cold Spring Bike Path, and the Middle Township Bike Path.
Register as a Ride Participant for $300 (no fundraising requirement) or a Fundraising Rider for $100 ($200 fundraising minimum). For questions, please reach out to our Ride Coordinators, Taylor Montgomery and Chris Albright, at ride@alsmidatlantic.org.
NEW Delaware ALS United Walk
Saturday, September 6, 2025 | 9 AM
On Saturday, September 6th, we will celebrate the first official Delaware ALS United Walk at Tubman-Garrett Riverfront Park in Wilmington. Based on survey results and continued feedback from our Delaware families, the Rehoboth Walk is now officially the Delaware ALS United Walk and will be at the Riverfront in Wilmington!
For questions about the Delaware ALS United Walk, please reach out to our Walk Coordinators, Taylor Montgomery and Chris Albright, at events@alsmidatlantic.org.
Your Stories Matter
May is ALS Awareness Month, so we want to highlight your stories! Contact Tony Heyl at Tony@alsmidatlantic.org to learn more.