You are not alone.
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.
Register with Our Care Team
Real people providing real help.
This is where you begin your personalized relationship with one of our highly trained ALS Care Services professionals. We will walk this journey with you and your loved ones. You will work with a real person in your community. A compassionate professional that you get to know, who provides you with guidance and tangible support. We are a nonprofit dedicated to you. We do not charge for any of our services.
Who can register? ALS United Mid-Atlantic serves people with Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), Progressive Bulbar Palsy (PBP) and Progressive Muscular Atrophy (PMA) living in our service geography. See the map of our coverage area. If you are not sure if we serve your diagnosis or your area, reach out to us at 215-643-5434, and we will talk with you in more detail. Our team of professionals provides expert advice and assistance for people living with ALS. Our office is open Monday through Friday.
Register with the National ALS Registry
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.
Find a Certified Center or Clinic
ALS United Mid-Atlantic collaborates with some of the best ALS physicians and clinics in our region to help ensure that people living with ALS have access to specialized care, based on best practices. Certified Treatment Centers of Excellence and Recognized Treatment Centers provide compassionate care in a supportive, family-oriented atmosphere.