Resource Groups
ALS United Mid-Atlantic hosts resource groups throughout our service region to provide an opportunity for those living with ALS, caregivers, families and friends to be mutually supportive, exchange practical information, and share their experiences. We also provide resource groups specifically for caregiver and bereavement support. All groups are free of charge.
For questions about a specific group, please contact the facilitator of that group. For general questions about our resource groups, please contact Steve Spaulding at steve@alsmidatlantic.org or 215-664-4131 (call or text).
Montgomery, Bucks & Philadelphia Counties, PA ALS Resource Group
11:00 AM to 12:30 PM via Zoom
3rd Saturday of the month
Anne Cooney, MSW, LSW
anne@alsmidatlantic.org
215-664-4177
North Central ALS Resource Group
10:30 AM via Zoom
4th Saturday of the month
Kris Reynolds, LSW
krissyrey37@gmail.com
570-955-8838
South Jersey ALS Resource Group
10:30 AM to 11:30 AM via Zoom
2nd Saturday of the month
Stephanie A. Hand-Kowchak, MSW,
LSW, FT
Stephaniehand00@gmail.com
609-457-9261
Delaware ALS Resource Group - Online
12:30 PM to 1:30 PM
2nd Wednesday of the month
Kate Adamek, LCSW
katealsconsultant@gmail.com
315-530-5583
“Online at Lunchtime” ALS Caregivers Resource Group
12:00 Noon to 1:00 PM
3rd Tuesday of the month
Jayne Etskovitz, MSW, LSW
jayne@alsmidatlantic.org
267-468-7015
Hershey/South Central ALS Resource Group
7:00 PM to 8:00 PM via Zoom
4th Wednesday of the month
Martin Young, MS NCC LPC
Martin@mylpc.online
717-516-5355
Delaware & Chester Counties, PA & Wilmington, DE ALS Resource Group
12:00 Noon to 1:00 PM via Zoom
3rd Thursday of the month
Linda Embry
Lembry246@gmail.com
Lehigh Valley ALS Resource Group
2:00 PM via Zoom
4th Thursday of the month
Jessie Meier, MSW, LSW
jessie@alsmidatlantic.org
610-797-2102
Caregivers Meeting
** Presented by Joan Dancy & PALS **
6:30 PM to 8:00 PM via Zoom
3rd Tuesday of the month
Kathy Valentino, LCSW
kathy@joandancyandpals.org
609-433-6333
PALS and Family Meeting
** Presented by Joan Dancy & PALS **
6:30 PM to 8:00 PM via Zoom
1st Tuesday of the month
Kathy Valentino, LCSW
kathy@joandancyandpals.org
609-433-6333
Newly Diagnosed: Questions, Answers & Support via Zoom
6:00 PM to 7:30 PM
2nd Tuesday of the month (Quarterly)
Melissa Coll, MSW, LSW and
Gail Houseman, RN, MSN-APRN
melissa@alsmidatlantic.org
215-948-3692
ALS with FTD Caregiver Phone Resource Group
** Presented by The Association for Frontotemporal Degeneration **
3:00 PM
2nd Tuesday of the month
info@theaftd.org
866-507-7222
ALS Bereavement Resource Group via Zoom
6:30 PM
3rd Monday of the month
Dr. Mark VandeBraak
Markvandebraak1@gmail.com
605-595-4650
Mindfulness for Those who Lost a Loved One to ALS
6:30 PM to 8:00 PM via Zoom
1st Wednesday of the month
Linda Embry
lembry246@gmail.com
Upcoming Meetings
Calendar of Events
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PALS and Family Meeting *Presented by Joan Dancy & PALS*
PALS and Family Meeting *Presented by Joan Dancy & PALS*
***Please contact the group facilitator in advance for additional information on the remote access via Zoom.*** *Please RSVP first time attending Kathy Valentino, LCSW 609-433-6333 kathy@joandancyandpals.org
1 event,
Mindfulness for Those who Lost a Loved One to ALS
Mindfulness for Those who Lost a Loved One to ALS
This group is held the first Wednesday of each month via Zoom. If you would like to join or just have questions, please contact the facilitator Linda Embry at lembry246@gmail.com.
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South Jersey ALS Resource Group via Zoom
South Jersey ALS Resource Group via Zoom
***Please contact the group facilitator in advance for additional information on the remote access.*** RSVP Required by 5/8 Stephanie A. Hand-Kowchak, MSW, LSW, FT stephaniehand00@gmail.com 609-457-9261
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“Online at Lunchtime” ALS Caregivers Resource Group
“Online at Lunchtime” ALS Caregivers Resource Group
***Please contact the group facilitator in advance for additional information on the remote access.*** Participate from home, with audio and video, via your computer, tablet or smart device! Jayne Etskovitz,…
ALS with FTD Caregiver Phone Resource Group ** Presented by The Association for Frontotemporal Degeneration **
ALS with FTD Caregiver Phone Resource Group ** Presented by The Association for Frontotemporal Degeneration **
***Please contact the group facilitator in advance for additional information on the remote access.*** For additional information about this group, call 866-507-7222 or email info@theaftd.org.
Newly Diagnosed: Questions, Answers & Support via Zoom
Newly Diagnosed: Questions, Answers & Support via Zoom
***Please contact Melissa in advance for additional information on the remote access.*** For everyone recently diagnosed with ALS – and their loved ones. Meets quarterly. Facilitated by Gail Houseman, RN,…
1 event,
Delaware ALS Resource Group – Online
Delaware ALS Resource Group – Online
***Please RSVP in advance for information on how to connect to the group*** Delaware Support Group for Families Living with ALS Kate Adamek, LCSW 315-530-5583 katealsconsultant@gmail.com Closed Facebook Page! Please…
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Delaware & Chester Counties, PA & Wilmington, DE ALS Resource Group via Zoom
Delaware & Chester Counties, PA & Wilmington, DE ALS Resource Group via Zoom
***Please contact the group facilitator in advance for additional information on the remote access.*** NOTE: New Group Facilitator Please RSVP if attending for first time. Linda Embry lembry246@gmail.com
Lehigh Valley ALS Resource Group via Zoom
Lehigh Valley ALS Resource Group via Zoom
***Please contact Jessie in advance for Zoom link.*** Please RSVP first time attending Jessie Meier, LSW, MSW jessie@alsmidatlantic.org 610-797-2102
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Montgomery, Bucks & Philadelphia Counties, PA ALS Resource Group via Zoom
Montgomery, Bucks & Philadelphia Counties, PA ALS Resource Group via Zoom
***Please contact the group facilitator in advance for additional information on the remote access.*** RSVP Required by 5/15 Anne Cooney, MSW, LSW anne@alsmidatlantic.org 215-664-4177
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ALS Bereavement Resource Group via Zoom
ALS Bereavement Resource Group via Zoom
We meet via Zoom on the third Monday of every month at 6:30 pm Eastern. If you would like to join us, and/or have questions about our group, please contact…
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Caregivers Meeting *Presented by Joan Dancy & PALS*
Caregivers Meeting *Presented by Joan Dancy & PALS*
***Please contact the group facilitator in advance for additional information on the remote access via Zoom.*** *Please RSVP if this is your first time attending Kathy Valentino, LCSW 609-433-6333 kathy@joandancyandpals.org
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North Central ALS Resource Group via Zoom
North Central ALS Resource Group via Zoom
Please join us for an ALS resource group in North Central, PA. This is a chance to meet others living with ALS or caring for someone living with ALS. Please…
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Hershey/South Central ALS Resource Group
Hershey/South Central ALS Resource Group
***Please note new group day and facilitator. Contact Martin Young in advance for link to Zoom.*** Martin Young, MS, NCC, LPC 717-516-5355 martin@mylpc.online Group (closed) Facebook Page! Please join us!…
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The outstanding care and services I receive from their team of medical professionals and the ongoing support from many staff members make all the difference in my life. Each day I am full of hope because I constantly read how ALS research is moving forward at a rapid pace."
Guy D.
Williamstown, NJ