Outside Resources

https://teamgleason.org/

Provides help with communication including voice banking, equipment including foldable/portable power wheelchairs and tub gliders, and other resources (see below).

https://teamgleason.org/pals-resource/

504.934.1037

https://hark-als.org/

HARK provides assistance to alleviate the financial burdens faced by families battling ALS. 

Contact is Donna York: donna@hark-als.org or 908.285.9202

https://bridgingvoice.org/

We enable and empower people with neurodegenerative disorders to communicate by removing the barriers between them and assistive technology.

info@bridgingvoice.org

718.313.0030

https://ccals.org/

The organization provides resources including equipment, educational opportunities, insurance and Medicare assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited. 

508.444.6775

https://www.als-mnd.org/support-for-pals-cals/advocacy/emergency-preparedness-toolkit/

Suggested “tool kits” to have ready in case of an emergency.

https://www.facebook.com/groups/252062556183576

Private Facebook website for people with ALS who are looking to find medical equipment (and occasionally used vans) for purchase or donation.

Contact for access to the website: Alisa Brownlee

Alisa@alsmidatlantic.org

215.631.1877

https://www.ssa.gov/

To check about Medicare and Disability, you can visit your local Social Security office in person or contact via email or phone.

800.772.1213

https://accessiblego.com/

Travel organization that helps people with any physical disability find accessible hotels, vans, equipment, etc.

888.681.2568