Resource & Support Groups
ALS United Mid-Atlantic hosts Support Groups throughout our service region to provide an opportunity for those living with ALS, caregivers, families and friends to be mutually supportive, exchange practical information, and share their experiences. We also provide support groups specifically for caregiver and bereavement support. All groups are free of charge.
For questions about a specific group, please contact the facilitator of that group. For general questions about our support groups, please contact Steve Spaulding at steve@alsmidatlantic.org or 215-664-4131 (call or text).
Calendar of Events
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PALS and Family Meeting *Presented by Joan Dancy & PALS*
PALS and Family Meeting *Presented by Joan Dancy & PALS*
***Please contact the group facilitator in advance for additional information on the remote access via Zoom.*** *Please RSVP first time attending Kathy Valentino, LCSW 609-433-6333 kathy@joandancyandpals.org
1 event,
Mindfulness for Those who Lost a Loved One to ALS
Mindfulness for Those who Lost a Loved One to ALS
Held the first Wednesday of each month via Zoom. If you would like to join, or just have questions, please contact the facilitator Linda Embry at lembry246@gmail.com.
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ALS with FTD Caregiver Phone Support Group ** Presented by The Association for Frontotemporal Degeneration **
ALS with FTD Caregiver Phone Support Group ** Presented by The Association for Frontotemporal Degeneration **
***Please contact the group facilitator in advance for additional information on the remote access.*** For additional information about this group, call 866-507-7222 or email info@theaftd.org.
1 event,
Delaware ALS Support Group – Online
Delaware ALS Support Group – Online
***Please RSVP in advance for information on how to connect to the group*** Delaware Support Group for Families Living with ALS Kate Adamek, LCSW 315-530-5583 katealsconsultant@gmail.com Closed Facebook Page! Please…
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South Jersey ALS Support Group via Zoom
South Jersey ALS Support Group via Zoom
***Please contact the group facilitator in advance for additional information on the remote access.*** RSVP Required by 12/12 Stephanie A. Hand-Kowchak, MSW, LSW, FT stephaniehand00@gmail.com 609-457-9261
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ALS Bereavement Support Group via Zoom
ALS Bereavement Support Group via Zoom
We meet via Zoom on the third Monday of every month at 6:30 pm Eastern. If you would like to join us, and/or have questions about our group, please contact…
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“Online at Lunchtime” ALS Caregivers Support Group
“Online at Lunchtime” ALS Caregivers Support Group
***Please contact the group facilitator in advance for additional information on the remote access.*** Participate from home, with audio and video, via your computer, tablet or smart device! Jayne Etskovitz,…
Caregivers Meeting *Presented by Joan Dancy & PALS*
Caregivers Meeting *Presented by Joan Dancy & PALS*
***Please contact the group facilitator in advance for additional information on the remote access via Zoom.*** *Please RSVP if this is your first time attending Kathy Valentino, LCSW 609-433-6333 kathy@joandancyandpals.org
1 event,
Hershey/South Central ALS Support Group
Hershey/South Central ALS Support Group
***Please note new group day and facilitator. Contact Martin Young in advance for link to Zoom.*** Martin Young, MS, NCC, LPC 717-516-5355 martin@mylpc.online Group (closed) Facebook Page! Please join us!…
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Delaware & Chester Counties, PA & Wilmington, DE ALS Support Group via Zoom
Delaware & Chester Counties, PA & Wilmington, DE ALS Support Group via Zoom
***Please contact the group facilitator in advance for additional information on the remote access.*** Please RSVP if attending for first time. Steve Spaulding, MA steve@alsmidatlantic.org 215-664-4131
Lehigh Valley ALS Support Group via Zoom
Lehigh Valley ALS Support Group via Zoom
***Please contact Jessie in advance for Zoom link.*** Please RSVP first time attending Jessie Meier, LSW, MSW jessie@alsmidatlantic.org 610-797-2102
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Montgomery, Bucks & Philadelphia Counties, PA ALS Support Group via Zoom
Montgomery, Bucks & Philadelphia Counties, PA ALS Support Group via Zoom
***Please contact the group facilitator in advance for additional information on the remote access.*** RSVP Required by 12/19 Anne Cooney, MSW, LSW anne@alsmidatlantic.org 215-664-4177
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North Central ALS Support Group via Zoom
North Central ALS Support Group via Zoom
Please join us for an ALS support group in North Central, PA. This is a chance to meet others living with ALS or caring for someone living with ALS. Please…
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Montgomery, Bucks & Philadelphia Counties, PA ALS Support Group
11:00 AM to 12:30 PM via Zoom
3rd Saturday of the month
North Central ALS Support Group
10:30 AM via Zoom
4th Saturday of the month
South Jersey ALS Support Group
10:30 AM to 11:30 AM via Zoom
2nd Saturday of the month
Delaware ALS Support Group - Online
12:30 PM to 1:30 PM
2nd Wednesday of the month
“Online at Lunchtime” ALS Caregivers Support Group
12:00 Noon to 1:00 PM
3rd Tuesday of the month
Hershey/South Central ALS Support Group
7:00 PM to 8:00 PM via Zoom
4th Wednesday of the month
Delaware & Chester Counties, PA & Wilmington, DE ALS Support Group
12:00 Noon to 1:00 PM via Zoom
3rd Thursday of the month
Lehigh Valley ALS Support Group
2:00 PM via Zoom
4th Thursday of the month
Caregivers Meeting
** Presented by Joan Dancy & PALS **
6:30 PM to 8:00 PM via Zoom
3rd Tuesday of the month
PALS and Family Meeting
** Presented by Joan Dancy & PALS **
6:30 PM to 8:00 PM via Zoom
1st Tuesday of the month
Newly Diagnosed: Questions, Answers & Support via Zoom
6:00 PM to 7:30 PM
2nd Tuesday of the month (Quarterly)
ALS with FTD Caregiver Phone Support Group
** Presented by The Association for Frontotemporal Degeneration **
3:00 PM
2nd Tuesday of the month
ALS Bereavement Support Group via Zoom
6:30 PM
3rd Monday of the month
Mindfulness for Those who Lost a Loved One to ALS
6:30 PM to 8:00 PM via Zoom
1st Wednesday of the month
Upcoming Meetings
The outstanding care and services I receive from their team of medical professionals and the ongoing support from many staff members make all the difference in my life. Each day I am full of hope because I constantly read how ALS research is moving forward at a rapid pace."
Guy D.
Williamstown, NJ