Time is Running Out!
2024 Annual Celebration Honoring the Philadelphia Phillies is days away.
Join us this month on Friday, November 15th, at 12:00 Noon as we honor the Philadelphia Phillies for their 40-year commitment to Strike Out ALS. In addition to remarks from the Phillies, this year’s event will feature the annual Flame of Hope Awards, a tribute to caregiving, and a special speech from Sarah Langs and Mandy Bell. Follow www.alsannualcelebration.org for details and reserve your seat.
Update from the ALS United Mid-Atlantic Care Team How Medicare Changes Can Help You
The ALS United Mid-Atlantic care team is always ready to assist ALS patients and families.
ALS United Mid-Atlantic is committed to assisting ALS families in all areas of their care needs. That includes navigating the often-complicated questions surrounding insurance and Medicare.
In 2022, Congress passed the Inflation Reduction Act, which included provisions to address the costs of prescription drugs through Medicare.
In order to best inform our ALS patients, ALS United Mid-Atlantic has vital resources from AARP to highlight important changes for Medicare beneficiaries.
ALS United Mid-Atlantic Promotes Promising ALS Research Projects
ALS patient Andrew Johnson met with Dr. Andrew Geronimo at the 2024 Help and Hope Symposium.
Thanks to your donations and advocacy, ALS United Mid-Atlantic is now able to lead a bold research agenda that includes significant investments in promising trials. These advances were highlighted during the 2024 Help and Hope Symposium.
In the summer of 2024, ALS United Mid-Atlantic Board approved funding for projects at ALS-TDI, Penn State Health Hershey Medical Center, the Jefferson Weinberg ALS Center, Temple University, and Pennsylvania Hospital.
Participating in research empowers ALS patients. This month, Marc Schefsky took part in an ongoing study with Dr. Andrew Geronimo at Penn State Health Hershey Medical Center to advance Brain Computer Interface.
Your donations and advocacy make this promising research possible.
Upcoming Events
Join us at Citizens Bank Park on Saturday, November 16!
On Saturday, November 16th at 9 AM, our ALS community will gather at Citizens Bank Park to celebrate the Philadelphia ALS United Walk Presented by Clemens Food Group, parent company of Hatfield Meats. The ALS United Walk is a true testament to the power of community. Hundreds of motivated friends and neighbors join together to show their love and support for families impacted by ALS.
For more information, visit www.PhiladelphiaALSUnitedWalk.org.
Save the Date:
ALS Patient and Family Holiday Parties
Patient & Family Holiday Party
People with ALS and their families are invited to join us on Sunday, December 8, at the Stardust Hotel at the Valley Forge Casino. Please RSVP to Carla Patton at Carla@alsmidatlantic.org.
Holiday Party for ALS Families
The Hershey Advisory Committee invites patients and their families to the Holiday Party for ALS Families. Join us at the Red Lion Hotel Harrisburg/Hershey on Sunday, December 15. Please RSVP to Michelle Rogers at MRogers@alsmidatlantic.org.
Mark Your Calendars for Giving Tuesday
On December 3, the world will act on Giving Tuesday, an international day celebrating philanthropy and the work of non-profits. Join ALS United Mid-Atlantic on #GivingTuesday to bring the world together in generosity.
Every donation to ALS United Mid-Atlantic is used to advance our mission of caring and advocating for people living with ALS and for funding research to treat and cure this disease. We could not do this without you!
ALS United Mid-Atlantic loves a good trend (remember the Ice Bucket Challenge?!) and we want generosity to be a trend! Post photos from your ALS United Walks, your ten-year commemorative IBC, Lou Gehrig Day, or our past Annual Celebrations and use the #GivingTuesday hashtag to get generosity trending!
Jess Ashby proudly joined her Samuel Adams colleagues at the 2024 Lehigh Valley ALS United Walk.
November 2024 Volunteers of the Month:
Jess Ashby and Samuel Adams Brewing Company
Samuel Adams Brewing Company is a leader in the fight against ALS. Since 2010, their golf outing has raised over $263,000 for ALS United Mid-Atlantic’s care and research programs. Over the past five years, Jess Ashby has organized the golf outing and ALS United Walk activities with Samuel Adams Brewing Company. ALS is personal to Jess, as she lost a sergeant to ALS during her time serving in the U.S. Army. Now Jess is proud to continue to give back and support the ALS cause.