News & Updates
Advocacy News from ALS United
Staff from ALS United Mid-Atlantic, ALS United Greater New York, and the ALS Network, representing our 15 ALS United member organizations, were proud to join partners in Washington, DC, to advocate for stronger home care support for people living with ALS, veterans, and their families. For people with ALS, home care is not a convenience, it’s a lifeline. Expanding Medicaid, TRICARE, and VA benefits ensures people with ALS can remain safe at home, receive essential care, and that their caregivers are supported and sustained. Together, we’re advancing policies that improve care today and hope for tomorrow.
Help Celebrate the 25th Annual Scott A. Mackler Memorial 5K Run/Walk
This fall marks a major milestone as the Scott A. Mackler Memorial 5K Run/Walk celebrates its 25th anniversary. Held at Temple Beth El in Newark, Delaware, the event continues a powerful tradition that began in 1999 and has since raised more than $2.5 million for the Scott A. Mackler, MD, PhD, Assistive Technology Program, helping to improve the lives of people with ALS throughout the Mid-Atlantic region.
Join ALS United Mid-Atlantic at Citizens Bank Park Next Month
ALS United Mid-Atlantic will host the 2025 Philadelphia ALS United Walk Presented by Hatfield Meats on Sunday, November 9, at Citizens Bank Park. The ALS United Walk is a wonderful opportunity for everyone in the ALS community to come together, show support, and make a difference. Your participation can help raise awareness and funds for crucial research and care.
Our ALS Stories
Upcoming Events
33rd Annual Billy Lake Memorial ALS Basketball Marathon
Saturday, October 4, 2025
The 33rd Annual Billy Lake Memorial ALS Basketball Marathon will take place at Bonner-Prendergast High School Gym. Spectators are heartily welcomed. Donations are even more heartily welcomed! You can become a shirt sponsor or a team sponsor, or a donor by visiting the website linked below.
The Billy Lake ALS Basketball marathon has the distinction of being the longest-running family fundraiser for ALS in the United States.
Roger Kirk ALS United Golf Outing Hosted by Greg Gross
Monday, October 6, 2025
On October 6, we will celebrate the 12th Annual Roger Kirk ALS United Golf Outing Hosted by Greg Gross. We are returning to the beautiful Old York Road Country Club where Roger was a beloved member for over twenty years. Roger waged a short but courageous battle with ALS and his family and friends honor his memory with this Outing.
For questions about the Roger Kirk ALS United Golf Outing Hosted by Greg Gross, please contact Taylor Montgomery at Taylor@alsmidatlantic.org.
Dance Your ALS Off
Saturday, November 1 | 2 PM
Save the date! Join us for an afternoon of fun, music, and dancing on Sunday, November 1st, at Camp Olympic Barn. This year’s event will feature a country music theme, so lace up your cowboy boots and join us in dancing to support ALS United Mid-Atlantic. The registration fee is $20 for adults, and kids are welcome to attend for free. Tickets will be available online soon!
For questions, please contact Jessie Meier, LSW, MSW at jessie@alsmidatlantic.org.
25th Annual Scott A. Mackler Memorial 5K Run/Walk
Sunday, November 2 | 12:30 PM
Join us at Temple Beth El in Newark this November to support the Scott A. Mackler, MD, Ph.D., Assistive Technology Program. Assistive technology gives a person with ALS new and alternative means to stay active and continue to participate in everyday activities.
For questions, please reach out to our Engagement Team at events@alsmidatlantic.org.
Philadelphia ALS United Walk Presented by Hatfield
Sunday, November 9 | 9 AM
We are excited to announce the ALS United Walk at Citizens Bank Park will be held on Sunday, November 9. We invite you to bring your family, friends, and neighbors for an inspiring day as our community comes together to show that no one faces ALS alone.
For questions about the ALS United Walk, please reach out to our Engagement Team at events@alsmidatlantic.org.
Annual Celebration
Friday, November 14 | Noon
Please save the date for our Annual Celebration on Friday, November 14, at Live! Casino & Hotel Philadelphia. We are proud to honor Asplundh for their significant impact on the ALS cause.
Event highlights include presentations from Asplundh, the Philadelphia Phillies, Jon “Boog” Sciambi, and the Flame of Hope Awards.