Privacy Policy

This is the website of ALS United Mid-Atlantic, https://www.alsmidatlantic.org

Our postal address is:

ALS United Mid-Atlantic
1015 Virginia Drive, Suite 110
Fort Washington, PA 19034

You can contact us via email at alsunited@alsmidatlantic.org or by phone at (215) 643-5434.

We provide this notice to explain our online information practices. By visiting our site at www.alsmidatlantic.org , you are accepting the practices described in this privacy notice.

Privacy Policy Statement

ALS United Mid-Atlantic is committed to protecting the privacy of its users. Information gathered by ALS United Mid-Atlantic is used to monitor the effectiveness of our site and respond to your questions and requests.

Aggregate Information

When you visit our website, our server automatically logs (records) domain name and standard anonymous information about the operating system and web browser you are using, as provided by your web browser. This automatically collected information is used for statistical purposes to help us manage our site and better serve the community, but it does not identify you in any way.

Identifiable Information

Donors

ALS United Mid-Atlantic respects the privacy of its financial supporters. We do not rent or exchange its donor list with any other organization.

Patient & Family Information

• Patient and family information, including, but not limited to, name, address, age and telephone number, is confidential and will only be shared with ALS United Mid-Atlantic affiliate entities with written permission from a patient or their designee. Under no circumstances will ALS United Mid-Atlantic provide information to outside entities, except where required by law and then only after providing notice to the patient and/or designee. ALS United Mid-Atlantic will, upon request of a patient or their designee or caretaker, serve as an intermediary between patients and outside entities where deemed appropriate.
• ALS United Mid-Atlantic may provide to government agencies and outside entities aggregate data on ALS including incidence and prevalence and number of patients served by ALS United Mid-Atlantic.

Data Security Statement

The security of your personal information is very important to us and we are committed to protecting the information we collect. Alsmidatlantic.org uses firewalls and has security measures in place at its physical facilities to protect against the loss, misuse, or alteration of information that we have collected from you at our website. This includes the use of Secure Sockets Layer (SSL) for processing contributions securely. SSL is the proven standard for secure web messaging transactions.

The ALS United Mid-Atlantic reserves the right to change this policy at any time. Our privacy policy will be kept up-to-date and clearly posted on our website.