Our Experts
ALS United Mid-Atlantic collaborates with top ALS scientists, clinicians, consultants, entrepreneurs, and executives in our local area and all over the world to advance ALS research. Their decades of experiences helps to accelerate research in many areas of study and provides an opportunity for people living with ALS to participate in the latest clinical trials.
A United Approach to ALS Research
In the second half of 2023, we officially became ALS United Mid-Atlantic. This separation allows us to retain our independence and preserves our nationally recognized care programs. When we announced this change, many of our supporters asked what this meant for the future of ALS research.
ALS Center is the First in the Nation to Offer Patients a New Interventional Clinical Study
Hackensack Meridian Neuroscience Institute at Jersey Shore University Medical Center’s ALS Center is the first ALS care provider in the United States to offer patients a new interventional clinical study.
Engage with NINDS/NIH by Sharing Your ALS Lived Experience
The National Institute of Neurological Disorders and Stroke (NINDS), seeks to include people with lived experience of neurological disorders in the planning, execution, and communication of research.
Perspectives on ALS Research: John Russo
From caregiving to research, ALS United Mid-Atlantic is committed to sharing the perspectives of those who understand ALS best. This is the first in a series of “Our Experts” posts as people with ALS highlight their experiences with ALS research.