Research We Fund

Your generous support enables ALS United Mid-Atlantic to fund millions of dollars in research locally and in locations across the globe. We fund projects across the research pipeline, from basic research through clinical trials, and our support has led to several potential treatments currently in clinical trials.

Research Initiatives

Project Title Applicant Award Start Date Award End Date Award Amount Primary Organization
Respiratory Health Management in Amytrophic Lateral Sclerosis through Telemonitoring and Nurse Health CoachingSimmons, Zachary01/31/202007/31/2023$197,302.00The Pennsylvania State University
Improving and expanding access to clinical trials in the Tri-State regionIlieva, Hristelina01/31/202301/30/2027$400,000.00Thomas Jefferson University
Enhancement of Trial Capacity at Temple University ALS Center of HopeHeiman-Patterson, Terry11/01/202210/31/2026$400,000.00Temple University – Of The Commonwealth System of Higher Education
Preclinical evaluation of bemcentinib as a novel therapeutic for ALSLee, Virginia01/15/202201/14/2024$500,000.00The Trustees of the University of Pennsylvania
Digital assessment tools for ALS & FTDDacks, Penny01/01/202312/31/2025$500,000.00The Association for Frontotemporal Degeneration
Axonal TDP-43 dysfunction as a pathogenic event in ALSDonnelly, Christopher01/01/202312/31/2023$50,000.00University of Pittsburgh
Potentiation of a nuclear-import receptor to counteract aberrant TDP-43 assemblyLinsenmeier, Miriam11/01/202210/31/2024$133,490.00University of Pennsylvania, School of Veterinary Medicine
Identifying genetic and small molecular modifiers of FUS-mediated ALSPandey, Udai09/01/201812/31/2021$300,000.00University of Pittsburgh Medical Center
2023 Sheila Essey Award for ALS ResearchLee, Virginia06/01/202305/31/2024$50,000.00University of Pennsylvania, Perelman School of Medicine