Our Mission
To unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS Care and Support Services
We provide comprehensive, person-centered support for people living with ALS and their families, including:
- ALS patient care coordination
- Emotional and practical support for caregivers and families
- Access to local resources, healthcare systems, and community programs
- Ongoing guidance to improve quality of life throughout every stage of ALS
Our goal is to ensure that people living with ALS receive consistent, compassionate, and accessible care services in Pennsylvania, New Jersey, and Delaware.
ALS Research and Treatment Advancement
We are committed to accelerating ALS research and treatment development through collaboration and innovation.
Our work includes:
- Supporting ALS clinical research initiatives and trials
- Partnering with research institutions and healthcare systems
- Advancing a coordinated national ALS research agenda
- Promoting the development of new therapies to extend life
- Connecting people with ALS to clinical trials and scientific leaders in Pennsylvania, New Jersey, Delaware, and surrounding areas
We believe progress in ALS treatment depends on strong collaboration between researchers, clinicians, and the ALS community.
ALS Advocacy and Public Policy
We advocate for policies that improve the lives of people affected by ALS at both the state and national levels. ALS United Mid-Atlantic advocates share their stories with elected leaders in Washington, DC, as well as Harrisburg, Pennsylvania; Trenton, New Jersey; and Dover, Delaware; and with local city and county officials.
Our advocacy priorities include:
- Increasing access to ALS care and treatment services
- Supporting funding for ALS research and innovation
- Strengthening healthcare systems for neurodegenerative disease care
- Elevating the voices of people living with ALS and their families
Our Core Values
Our work is guided by three core values:
- Compassion - Centering the needs of people living with ALS
- Integrity - Ensuring transparency, accountability, and trust
- Urgency - Acting quickly to improve care and advance research
Guiding Principles
We operate with a commitment to:
- Ensuring that Ppeople with ALS and their families come first
- Collaboration across care, research, and advocacy systems
- Open communication and transparency
- Diversity, equity, and inclusion in all programs
- Innovation in ALS care and treatment approaches
- Accountability in delivering measurable impact
Strategic Impact
Improving ALS Care Systems
We strengthen collaboration between healthcare providers, community programs, and support services to ensure people living with ALS receive coordinated, high-quality care.
Advancing ALS Research
We help drive forward a collaborative ALS research agenda focused on developing treatments that extend life, improve quality of life, and move closer to a cure.
ALS Community Partner: The Philadelphia Phillies
We are proud of our longstanding partnership with the Philadelphia Phillies, which has supported ALS awareness and fundraising efforts since 1984.
Through this enduring collaboration, the Phillies have played a vital role in helping amplify the mission to support people living with ALS and their families. Their continued commitment has helped raise awareness across the region and strengthen community engagement in the fight against ALS.
This partnership remains a cornerstone of our outreach efforts and continues to inspire support from individuals, businesses, and healthcare organizations dedicated to advancing ALS care and research.