What We Do
At ALS United Mid-Atlantic, we are dedicated to addressing all of the needs of ALS families throughout our territory in Pennsylvania, New Jersey, and Delaware through compassionate care programs and groundbreaking research.
For over 40 years, ALS United Mid-Atlantic has worked tirelessly to ensure every person affected by ALS can access the support they need as we come together to find new treatments and a cure for ALS.
ALS United Mid-Atlantic is committed to enhancing the quality of life for those living with ALS through comprehensive care programs. We understand the value of those with the disease being able to communicate, function safely in their home, and travel to ALS Treatment Centers for comprehensive evaluation and treatment. Our programs are designed to meet these essential care needs as well as the emotional needs of people living with ALS and their caregivers.
ALS United Mid-Atlantic focuses on state and federal advocacy for research, health & long-term care, and caregiver support. The ALS community's involvement in advocacy has led to increased federal funding for ALS research at the NIH and federal funding for ALS research through the Department of Defense.
Through the power of personal testimony, ALS advocates from ALS United Mid-Atlantic have achieved significant success for the ALS cause including increased funding for care in Pennsylvania, New Jersey, and Delaware and passage of ACT for ALS.
We are the largest private funder of ALS research worldwide, and our efforts have led to some of the most promising and significant advances in the field. So far, we have committed more than $122 million to research. Thanks to the donations raised during the ALS Ice Bucket Challenge, we're now spending three times more than on ALS Research than before summer 2014.
Collaboration is the cornerstone of our research program. We partner with academia, industry, government, and other nonprofit organizations and lead by spurring long-lasting collaborations among researchers across all sectors, leading to globally shared data, protocols, and research samples to accelerate research progress. The Greater Philadelphia area is one of the top regions in the country for promising ALS research.
Public Education & Awareness
Through community outreach, media relations, social media, and more, ALS United Mid-Atlantic raises awareness about ALS year-round. Our website is a vital source of information for those battling ALS and for people looking for the latest news and information about the disease. We provide an opportunity for anyone touched by this devastating disease to gather and connect with others through our many community-outreach events. Our long relationship with the Philadelphia Phillies to Strike Out ALS has brought heightened attention to the ALS cause since 1984.
If you have specific questions about ALS symptoms or tips for living with ALS, please contact one of our trained nurses or social workers.